Philanthropy Project: Prader-Willi Syndrome
The Women's Leadership Network has chosen to support the Foundation for Prader-Willi Research during its 2013 Leadership Conference. Check back in February for more information about the Philanthropy Project.
About Prader-Willi Syndrome
Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as the most common genetic cause of life-threatening childhood obesity.
PWS was first described by Swiss doctors Andrea Prader, Alexis Labhart and Heinrich Willi in 1956 based on the clinical characteristics of nine children they examined. The common characteristics defined in the initial report included small hands and feet, abnormal growth and body composition (small stature, very low lean body mass and early-onset childhood obesity), hypotonia (weak muscles) at birth, insatiable hunger, extreme obesity and intellectual disability.
To learn more about Prader-Willi Syndrome, visit www.fpwr.org.